Help for Family Caregivers of Teenagers & Adults with Down Syndrome
Help for Family Caregivers of Teenagers & Adults with Down Syndrome
Help for Family Caregivers of Teenagers & Adults with Down Syndrome
Some days you’re holding everything together. Other days, you’re just trying to make it to bedtime.If you’ve ever felt exhausted by meltdowns, aggression, or constant resistance, you’re not alone. Over 93% of families report weekly behaviour concerns in individuals with Down Syndrome. These challenging behaviours aren’t a reflection of your caregiving — they’re signals that …
Before We Begin — A Personal Note Dear Caregiver, If you’re here, it’s because you love someone with Down Syndrome and you’re looking for ways to help them live more comfortably and confidently. I understand the weight you carry — balancing medical appointments, therapies, daily routines, future plans, and the countless unseen tasks that fill …
As the parent of a child with Down Syndrome, you’ve worn many hats — teacher, nurse, advocate, protector. But one role that often catches you off guard is future planner. Especially when it comes to helping your other children think about what life might look like if they choose to take on some caregiving responsibilities …
Trying to save money as a Down Syndrome caregiver while handling rent, groceries, therapy appointments, and surprise expenses can feel overwhelming. You’re doing so much already—thinking about the future might seem like a luxury. But saving money, even in small amounts, creates breathing room and opens up options for your loved one’s care and your …
Thinking about continued care, i.e., what happens after you’re gone, isn’t easy, but planning for the ongoing care of a loved one with Down Syndrome can bring tremendous peace of mind. Taking proactive steps can prevent confusion, stress, and unexpected disruptions, ensuring that your loved one continues to receive the care they need, even if …
Family caregivers of teenagers and adults with Down Syndrome often wonder how best to include their loved ones in future planning, i.e., decisions about what lies ahead. Inviting your loved one to participate not only builds confidence and mutual respect, but also helps ensure that plans truly reflect their hopes, strengths, and needs. Future planning …
Preparing an all-in-one medical history for a loved one can be a daunting task. I’ve seen many families struggle to compile essential information over the years, and I know how impactful a well-organized record can be during emergencies or regular care. The process may seem overwhelming at first, but a step‐by‐step approach makes it manageable …
Planning for guardianship and legal decisions for individuals with Down Syndrome requires careful thought and teamwork. Every family and every person is unique, so there is no one-size-fits-all solution. This guide breaks down the process into clear, simple steps to help you create a plan that grows and adapts with your loved one’s needs. Step …
Choosing the right living arrangement for adults with Down Syndrome is important for their comfort, independence, and overall quality of life. Every adult is unique, and the right choice depends on their needs, preferences, and long-term goals. In this guide, you’ll find practical tips and simple steps to help you decide on the best living …
Establishing a special needs trust is a process that helps secure financial stability for your loved one with Down Syndrome. In the USA, a special needs trust protects your loved one’s eligibility for government benefits while offering extra funds to improve their quality of life. In your country, it may not be called “special needs …