Hey there, fellow Family Caregivers! We all know that navigating the role of a caregiver can be a bit like juggling flaming torches while riding a unicycle. That’s where “The Important Information Organizer for Family …
Alicia
Showing: 1 - 10 of 82 Articles
What is Adaptive Clothing?
Have you heard the term “adaptive clothing”? I recently did and if you’re like me, you were left wondering exactly what is adaptive clothing? Well, adaptive clothing refers to a type of garment that is …
I Get Scared Every Day
I became my brotherโs caregiver in 2021. Weโre 3 years apart, so I guess you could say weโve always bonded. Our parents are aging, and their mental health is declining, so I guess I always …
I Have No Identity Outside of Being a Caregiver
Last month, a coworker of mine asked me what I did outside of work for fun or just in general. After I gave my answer, he asked me what I did that did not involve …
I Am Struggling Financially
I am struggling financially and I am hiding it from my friends and family. Shame or guilt, maybe? I am not sure. I just have not been able to ask for help. I knew taking …
The Life That Could Have Been
I regularly sit and fantasize about the life that could have been…meaning, what my life would have been like if I was not a caregiver. I mourn the life that could have been. Throughout the …
I Am Scared My Child Will Have A Disability
I just found out that I am pregnant, and I am feeling excited and terrified at the same time. My husband wants to tell his family, but I am not ready to have these conversations …
I Feel Unloved & Unappreciated
I live with my mom and my sister who has Down Syndrome. I do all the shopping and cooking, plus other chores around the house. Also, my own physical health is not the best. Despite …
Caring For My Child Consumes Me
I am an older parent to a son who has Downโs Syndrome. I feel like all of my time and attention are consumed by my son, leaving my daughter, my husband and not to mention …
I Get Tired of Advocating for My Child
There are moments when I run out of steam. Times when I am so fed up with peopleโs ignorance and the lack of resources for persons with Down Syndrome. There are times when I get …