As the parent of a child with Down Syndrome, you’ve worn many hats — teacher, nurse, advocate, protector. But one role that often catches you off guard is future planner. Especially when it comes to …
Alicia
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How To Save Money As A Down Syndrome Caregiver (While Still Covering Today’s Expenses)
Trying to save money as a Down Syndrome caregiver while handling rent, groceries, therapy appointments, and surprise expenses can feel overwhelming. You’re doing so much already—thinking about the future might seem like a luxury. But …
How To Ensure Continued Care After You’re Gone
Thinking about continued care, i.e., what happens after you’re gone, isn’t easy, but planning for the ongoing care of a loved one with Down Syndrome can bring tremendous peace of mind. Taking proactive steps can …
How To Involve Your Loved One In Future Planning Decisions
Family caregivers of teenagers and adults with Down Syndrome often wonder how best to include their loved ones in future planning, i.e., decisions about what lies ahead. Inviting your loved one to participate not only …
How To Prepare A Comprehensive Medical History For Your Loved One
Preparing an all-in-one medical history for a loved one can be a daunting task. I’ve seen many families struggle to compile essential information over the years, and I know how impactful a well-organized record can …
How To Plan for Guardianship for Individuals With Down Syndrome
Planning for guardianship and legal decisions for individuals with Down Syndrome requires careful thought and teamwork. Every family and every person is unique, so there is no one-size-fits-all solution. This guide breaks down the process …
How To Choose The Right Living Arrangement For Adults With Down Syndrome
Choosing the right living arrangement for adults with Down Syndrome is important for their comfort, independence, and overall quality of life. Every adult is unique, and the right choice depends on their needs, preferences, and …
How To Establish A Special Needs Trust For Future Financial Security
Establishing a special needs trust is a process that helps secure financial stability for your loved one with Down Syndrome. In the USA, a special needs trust protects your loved one’s eligibility for government benefits …
How To Create A Long Term Care Planning Strategy For Your Loved One With Down Syndrome
Long term care planning for a loved one with Down Syndrome requires careful thought and compassionate planning. It isn’t just about immediate needs. It’s about creating a sustainable plan that addresses evolving needs through the …
How To Balance Your Life & Caregiving: 7 Proven Tips for Down Syndrome Family Caregivers
Many Down Syndrome family caregivers struggle with the challenge of balancing their responsibilities with taking care of their own needs. When you devote your life to caring for someone else, it can be easy to …