Help for Caregivers of Teenagers & Adults with Down Syndrome
Help for Caregivers of Teenagers & Adults with Down Syndrome
“Caregiver Confessions” are the tough times we face as caregivers…the struggles, the hard decisions we have to make, our lowest points and the difficult times we endure.
You will be surprised how many caregivers feel the way you do or have experienced similar situations to yours.
Know MoreFind some inspiration with our latest blog posts.
As the parent of a child with Down Syndrome, you’ve worn many hats — teacher, nurse, advocate, protector. But one role that often catches you off guard is future planner. Especially when it comes to …
Trying to save money as a Down Syndrome caregiver while handling rent, groceries, therapy appointments, and surprise expenses can feel overwhelming. You’re doing so much already—thinking about the future might seem like a luxury. But …
Thinking about continued care, i.e., what happens after you’re gone, isn’t easy, but planning for the ongoing care of a loved one with Down Syndrome can bring tremendous peace of mind. Taking proactive steps can …
Family caregivers of teenagers and adults with Down Syndrome often wonder how best to include their loved ones in future planning, i.e., decisions about what lies ahead. Inviting your loved one to participate not only …
Preparing an all-in-one medical history for a loved one can be a daunting task. I’ve seen many families struggle to compile essential information over the years, and I know how impactful a well-organized record can …
Planning for guardianship and legal decisions for individuals with Down Syndrome requires careful thought and teamwork. Every family and every person is unique, so there is no one-size-fits-all solution. This guide breaks down the process …
Choosing the right living arrangement for adults with Down Syndrome is important for their comfort, independence, and overall quality of life. Every adult is unique, and the right choice depends on their needs, preferences, and …
Establishing a special needs trust is a process that helps secure financial stability for your loved one with Down Syndrome. In the USA, a special needs trust protects your loved one’s eligibility for government benefits …
Long term care planning for a loved one with Down Syndrome requires careful thought and compassionate planning. It isn’t just about immediate needs. It’s about creating a sustainable plan that addresses evolving needs through the …
Many Down Syndrome family caregivers struggle with the challenge of balancing their responsibilities with taking care of their own needs. When you devote your life to caring for someone else, it can be easy to …
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