Hi Everyone. My name is Alicia and I have a younger sister, Shadeeza, who has Down Syndrome (DS).
I am a sibling who, over time, transitioned into a primary caregiver. From a very young age, I would constantly worry about my sister and had an intense desire to see her happy with the life she’s living. I remember nights upon nights that I would cry myself to sleep, sick with worry for her and not knowing if things would work out and if she would be ok. My sister is now an adult and yes, I still worry, but now being an adult myself, I also reach out to persons, do my research, do whatever I have to do to make sure Shadeeza is happy and that I am also ok.
What I have found though, is that the older Shadeeza got, the harder it was for me to find any kind of help or support for her. Truth be told, it has also become harder for me to find support for myself as a caregiver of an adult with DS…and we all know, we the caregivers need all the help and support we can get.
It seems to me that all the focus is on our loved ones when they are younger…you know, when they’re born, which school to place them in, which doctors, therapists to see, what learning tools to use…and then….radio silence…what happens after their teenage years, when they have completed high school? Do they go to college? Do they get a job? Where do they live? Do they have friends? Do they have sex? OMG! Yes, that one scares the crap out of most caregivers. Not to mention the million-dollar question of “What happens to my loved one if, God forbid, I die or become incapacitated?”.
Take a breath. Guys, I’m with you. That’s some scary shiitake mushroom! Believe me, I get it. That is why I decided to create this website…to help caregivers take care of themselves and be their best selves, whilst assisting their loved ones to also be their best selves.
At HappyDowns, you will find future planning, health, financial and caregiver tips. All information is aimed at assisting you, as the caregiver, to thrive and for letting you know that you are seen and your needs are just as important. By helping you, we also help your loved one who has Down Syndrome.
So, please stop by HappyDowns on a regular basis to catch up on the latest, and if at any time you find something of interest to you, please get involved on the website…leave a comment, share your experience, your opinions, share what you found to be interesting with our family caregivers and invite them to visit HappyDowns. We welcome your feedback and we are more than happy to connect with you.
Let me just pause for a moment to say this to you…you ARE a GOOD caregiver. At times, we are so hard on ourselves. I know you are trying your best to do right by your loved one…case in point, you are on this website right now, hungry for information that will help improve your loved one’s life. So, cut yourself some slack. None of us are perfect. We do the best we can.
With that being said, I wish happiness for you and your family and thanks for dropping by!
Founder of HappyDowns