Help for Family Caregivers of Teenagers & Adults with Down Syndrome
Help for Family Caregivers of Teenagers & Adults with Down Syndrome
Help for Family Caregivers of Teenagers & Adults with Down Syndrome
I became my brother’s caregiver in 2021. We’re 3 years apart, so I guess you could say we’ve always bonded. Our parents are aging, and their mental health is declining, so I guess I always knew I would be caring for him eventually. My spouse and I just turned 31, and I get scared every …
Last month, a coworker of mine asked me what I did outside of work for fun or just in general. After I gave my answer, he asked me what I did that did not involve my sister (who has Down Syndrome). I did not have an answer. The conversation ended there and to be honest, …
I am struggling financially and I am hiding it from my friends and family. Shame or guilt, maybe? I am not sure. I just have not been able to ask for help. I knew taking care of someone with a disability would require money and thus, add to my financial costs, but I was not …
I regularly sit and fantasize about the life that could have been…meaning, what my life would have been like if I was not a caregiver. I mourn the life that could have been. Throughout the years, I made many decisions based on what I thought was best for my brother…not what was best for me. …
I just found out that I am pregnant, and I am feeling excited and terrified at the same time. My husband wants to tell his family, but I am not ready to have these conversations with anyone right now. You know, the: These questions may seem harmless to the “regular” person, but these questions, once …
I live with my mom and my sister who has Down Syndrome. I do all the shopping and cooking, plus other chores around the house. Also, my own physical health is not the best. Despite all that I do for my mom and sister, my mom makes me feel as if she is doing me …
I am an older parent to a son who has Down’s Syndrome. I feel like all of my time and attention are consumed by my son, leaving my daughter, my husband and not to mention myself unattended to…basically ignored. Caring for my son is tiring and relentless. It’s tough now, but the future scares the …
There are moments when I run out of steam. Times when I am so fed up with people’s ignorance and the lack of resources for persons with Down Syndrome. There are times when I get tired of advocating for my child and I just wish I did not have to…I wish society was designed to …
I never asked for this. I am a sibling who over time became the primary caregiver for my younger sister who has Down Syndrome. I have no children of my own and I am not married. So, one would think that I should be, as the song goes, “free, single and disengaged”. I should be …
Whenever I see other Sibs, especially young children I feel sad. I worry about their future. I worry if their parent(s) is/are doing all they can to give that child, the one without the disability, a fighting chance in this world. Are they getting to live their own life? Are they getting the chance to …