I live with my mom and my sister who has Down Syndrome. I do all the shopping and cooking, plus other chores around the house. Also, my own physical health is not the best. Despite …
Caregiver Confessions
Showing: 1 - 9 of 9 Articles
Caring For My Child Consumes Me
I am an older parent to a son who has Down’s Syndrome. I feel like all of my time and attention are consumed by my son, leaving my daughter, my husband and not to mention …
I Get Tired of Advocating for My Child
There are moments when I run out of steam. Times when I am so fed up with people’s ignorance and the lack of resources for persons with Down Syndrome. There are times when I get …
I Do Not Want To Be A Caregiver
I never asked for this. I am a sibling who over time became the primary caregiver for my younger sister who has Down Syndrome. I have no children of my own and I am not …
Whenever I See Other Sibs, I Feel Sad for Them
Whenever I see other Sibs, especially young children I feel sad. I worry about their future. I worry if their parent(s) is/are doing all they can to give that child, the one without the disability, …
I Want To Run Away
I have fantasized about running away. Just packing it all up and moving to some corner of the world, away from all my family. Why? Because I want no one else’s responsibilities but my own. …
I Wish My Sister Did Not Have Down Syndrome
So, I often see articles where persons speak about how much of a blessing it is to have a sibling/child with Down Syndrome (DS). Honestly, I struggle with this sentiment. Do I love my sister? …
I Am So Not Ready to Live with My Sister
In a matter of weeks, my sister and I will be moving in together…and so it will be just us two. Sigh. I am so not ready to live with my sister. In all of …
I Feel Defeated
It’s one of those days…a day when I feel like I cannot be bothered anymore. I am tired of my sister not being the adult that her age says she is. I am tired of …