Help for Family Caregivers of Teenagers & Adults with Down Syndrome
Help for Family Caregivers of Teenagers & Adults with Down Syndrome
Help for Family Caregivers of Teenagers & Adults with Down Syndrome
Planning for the future of your loved one who has Down Syndrome is multifaceted. There are many moving parts, many pieces to the puzzle. One very important piece is having conversations. Conversations with your loved one, your family members, friends, legal and financial professionals, and even members of government organizations who provide services for your …
As a family caregiver, what is your plan for the future? Your future. Your loved one’s future. What does life look like 10 years or 20 years from now? Future Planning is one of, if not the most important thing family caregivers must do. We must plan ahead. Why? Simply, because we won’t live forever. …
Calling all parents of teenagers and adults who have Down Syndrome…I need you to pause and seriously consider the following words: What happens to my child if I die? Mom…or Dad…have you stopped to really think about this? I know that death is never a welcomed topic. I know that confronting our own mortality and …
Imagine you are at work and you get a call. You are told that your mom, who is the primary caregiver for your brother, has been in a vehicular accident…and your brother was in the car with her. Your mind immediately starts to race with questions. How bad was the accident? Are they both OK? …
I think we need to have a frank conversation when it comes to caregivers and money. As a caregiver, did you honestly sit down and pencil out your finances and how they would be impacted by you becoming a lifelong caregiver? Parents, have you actually taken the time to think about the financial impact of …
As a caregiver, you wear many hats — advocate, protector, planner, provider. And while your heart is full of love, your days are often stretched thin. What if there were a way to build something meaningful for your future, without having to sacrifice the care your loved one needs right now? That’s the question I …
Who has time to “get help”? Not me. I have to be working at a job I hate, working overtime and on weekends, just to attempt to cover the bills each month. I have to be monitoring my loved one…making sure the doctor visits are done, the prescriptions are filled, food is in the house, …
It’s the thing no family caregiver wants to admit that they are feeling. Why? Guilt. We think we are “bad” for feeling resentment towards our child, parent or another family member. We do not want to be the one to say “Hey guys! I am not okay with the fact that my child has Down …
Chances are, this is the first time that you are hearing the term “compassion fatigue”…am I right? No worries guys, you are not alone. I mean, this is not exactly the sort of thing that comes up in everyday conversation. I do believe, however, that it is important for family caregivers to be aware of …
ATTENTION! Family caregivers all over the world…November is your month. November is Family Caregiver Awareness Month! It’s our time guys! To each and every one of you who has taken on the role of being the primary caregiver for your family member(s) who has Down Syndrome…whether you’re a mommy, daddy, sister, brother, aunt, uncle, grandma, …