Help for Family Caregivers of Teenagers & Adults with Down Syndrome
Help for Family Caregivers of Teenagers & Adults with Down Syndrome
Help for Family Caregivers of Teenagers & Adults with Down Syndrome
Happy Siblings Day to those brothers and sisters known as “Sibs”. You are a “Sib” if you grew up with a brother or sister who has a disability. We are sometimes called “The Others”. We are our parents’ other children…and some of us really had experiences that led us to feel as if the attention …
Down Syndrome is what I call a visible disability…as they see the person, they see the disability, and of course every preconceived notion presents itself. Something happened the other day that reminded me why it’s important for all of us to focus on the ability of a person and not the disability that they happen …
April is Sexual Assault Awareness Month in the US and the theme for this year is ‘I Ask’. This year’s theme is all about consent…why it’s important to ask for someone’s consent, how to ask for consent and respecting if someone says “No”. What Is Consent? Consent is basically asking for someone’s permission to do …
What can I say? Shit happens…literally. Bathroom woes are an all too common occurrence for a caregiver. I know this is not a topic that anybody really wants to address, but as caregivers, this is a constant battle for us. How do we get our loved ones to wipe their butts properly after they use …
In a matter of weeks, my sister and I will be moving in together…and so it will be just us two. Sigh. I am so not ready to live with my sister. In all of my adult life, probably three out of those many years I got to live by myself and thus had a …
Yep, I said it. Sometimes, Down Syndrome (DS) just plain sucks. It sucks that your sibling has to deal with all the things that come with being someone with a disability and it sucks that you, as a sibling, have to deal with all the things that come with being the sibling of someone with …
Are you obligated to take care of your sibling who has Down Syndrome (DS)? Quite frankly…no. They are your brother or sister…not your child. Your parents have that obligation. You could be the type of person who doesn’t want kids and wants to travel the world with your spouse and focus on your career/business. You …
I had a conversation with the father of a woman who has Down Syndrome (DS) and this conversation taught me a few things. I learnt that there are parents out there, who upon getting the news that their child has DS, react the way most of us do: we feel sad, angry and/or depressed. We …
So, the other day, I took my sister to the podiatrist and someone in the office said something to me that really struck me. They said “You are doing a good job”. At first, I was puzzled. I did not know what the person was referring to, but then the person went on to say …
March 21st is World Down Syndrome Day…a day when we educate society on what Down Syndrome (DS) really is and not what they assume it to be. So, what is Down Syndrome? It took me awhile to decide how to approach this, as there are many websites out there that give you a great clinical …