Help for Family Caregivers of Teenagers & Adults with Down Syndrome
Help for Family Caregivers of Teenagers & Adults with Down Syndrome
Help for Family Caregivers of Teenagers & Adults with Down Syndrome
“I resent my sister”. “I resent my brother”. You might be thinking to yourself how could anyone ever think or say that about their sibling with DS, but it’s quite easy to get to such a place…quite easy. The truth is, if you are not careful, you will end up saying these words. Picture This… …
Having kids of my own…should I or shouldn’t I? Does your sibling impact your decision to have children? You want to know the truth? Having a sibling with Down Syndrome does in fact impact the route that one takes in relation to having kids. Different siblings make different choices. Take for example my older sister…she …
Yep, I said it. Sometimes, Down Syndrome (DS) just plain sucks. It sucks that your sibling has to deal with all the things that come with being someone with a disability and it sucks that you, as a sibling, have to deal with all the things that come with being the sibling of someone with …
Are you obligated to take care of your sibling who has Down Syndrome (DS)? Quite frankly…no. They are your brother or sister…not your child. Your parents have that obligation. You could be the type of person who doesn’t want kids and wants to travel the world with your spouse and focus on your career/business. You …
I had a conversation with the father of a woman who has Down Syndrome (DS) and this conversation taught me a few things. I learnt that there are parents out there, who upon getting the news that their child has DS, react the way most of us do: we feel sad, angry and/or depressed. We …
How am I going to continue to provide for my sister AND myself? How will I be able to afford the things that we both need? Will I have to stay in a job that I do not like and thus feel the joy drain out of my body every day just so that I …
So, the other day, I took my sister to the podiatrist and someone in the office said something to me that really struck me. They said “You are doing a good job”. At first, I was puzzled. I did not know what the person was referring to, but then the person went on to say …
March 21st is World Down Syndrome Day…a day when we educate society on what Down Syndrome (DS) really is and not what they assume it to be. So, what is Down Syndrome? It took me awhile to decide how to approach this, as there are many websites out there that give you a great clinical …
I have been concerned about my sister’s feet for some time now, due to the following reasons: It appears she has “flat feet”. She has calluses on the sole of her feet She complains that the calluses sometimes hurt She’s overweight The fact that she was feeling any sort of pain worried me. What does …
CONGRATULATIONS!!!! You made it to another year without going insane from all the demands of life…well done! So now we’re here…what’s the plan? I know one of the things resting on my mind is what can I do this year to improve my sister’s quality of life. What needs to be done…what is she going …