Help for Family Caregivers of Teenagers & Adults with Down Syndrome
Help for Family Caregivers of Teenagers & Adults with Down Syndrome
Help for Family Caregivers of Teenagers & Adults with Down Syndrome
Happy Siblings Day to those brothers and sisters known as “Sibs”. You are a “Sib” if you grew up with a brother or sister who has a disability. We are sometimes called “The Others”. We are our parents’ other children…and some of us really had experiences that led us to feel as if the attention …
Down Syndrome is what I call a visible disability…as they see the person, they see the disability, and of course every preconceived notion presents itself. Something happened the other day that reminded me why it’s important for all of us to focus on the ability of a person and not the disability that they happen …
April is Sexual Assault Awareness Month in the US and the theme for this year is ‘I Ask’. This year’s theme is all about consent…why it’s important to ask for someone’s consent, how to ask for consent and respecting if someone says “No”. What Is Consent? Consent is basically asking for someone’s permission to do …
The International Disability Day of Mourning (DDoM) is recognized worldwide every year on March 1st. People across the globe join to remember persons with disabilities who were murdered by their parents/caregivers/family members. Yep…you read right…murdered…and apparently this happens often enough that there’s an actual day to recognize it. MURDER – The crime of intentionally killing …
What can I say? Shit happens…literally. Bathroom woes are an all too common occurrence for a caregiver. I know this is not a topic that anybody really wants to address, but as caregivers, this is a constant battle for us. How do we get our loved ones to wipe their butts properly after they use …
In a matter of weeks, my sister and I will be moving in together…and so it will be just us two. Sigh. I am so not ready to live with my sister. In all of my adult life, probably three out of those many years I got to live by myself and thus had a …
So today I went to my first counselling session…to deal with the issues that I am having because I am a caregiver. All along I have been trying to hold everything inside and “deal with it”, which honestly meant just ignoring and pretending my issues don’t exist because who has time to think about me…it’s …
It’s one of those days…a day when I feel like I cannot be bothered anymore. I am tired of my sister not being the adult that her age says she is. I am tired of her not understanding social situations and therefore what’s appropriate behaviour and what’s not appropriate. I am tired that I have …
That feeling…you go to work, you go home. Or you go to school, work and then go home. Or you go to work, church and home. What’s that feeling? It’s what makes you pause and say “I have no social life” and it sucks. Do you really want that for your loved one who has …
It’s the end of another year and of course this is a time that many of us reflect and think on the things that we did or did not do and determine our next step forward. So, I found myself looking back over my life and I found that from the perspective of being a …