Help for Family Caregivers of Teenagers & Adults with Down Syndrome
Help for Family Caregivers of Teenagers & Adults with Down Syndrome
Help for Family Caregivers of Teenagers & Adults with Down Syndrome
I never asked for this. I am a sibling who over time became the primary caregiver for my younger sister who has Down Syndrome. I have no children of my own and I am not married. So, one would think that I should be, as the song goes, “free, single and disengaged”. I should be …
October is Down Syndrome (DS) Awareness Month…a time when families with loved ones who have DS shout it from the mountain tops and let everyone know that persons with Down Syndrome are to be treated with respect and accepted by society, just like everyone else. This is true…we are all human beings and should be …
So, I often see articles where persons speak about how much of a blessing it is to have a sibling/child with Down Syndrome (DS). Honestly, I struggle with this sentiment. Do I love my sister? Absolutely. I think she’s a fabulous chick. I also think what makes her fabulous has nothing to do with DS…it’s …
Happy Siblings Day to those brothers and sisters known as “Sibs”. You are a “Sib” if you grew up with a brother or sister who has a disability. We are sometimes called “The Others”. We are our parents’ other children…and some of us really had experiences that led us to feel as if the attention …
In a matter of weeks, my sister and I will be moving in together…and so it will be just us two. Sigh. I am so not ready to live with my sister. In all of my adult life, probably three out of those many years I got to live by myself and thus had a …
That feeling…you go to work, you go home. Or you go to school, work and then go home. Or you go to work, church and home. What’s that feeling? It’s what makes you pause and say “I have no social life” and it sucks. Do you really want that for your loved one who has …
It’s the end of another year and of course this is a time that many of us reflect and think on the things that we did or did not do and determine our next step forward. So, I found myself looking back over my life and I found that from the perspective of being a …
Having kids of my own…should I or shouldn’t I? Does your sibling impact your decision to have children? You want to know the truth? Having a sibling with Down Syndrome does in fact impact the route that one takes in relation to having kids. Different siblings make different choices. Take for example my older sister…she …