A support system, according to Merriam-Webster, is “a network of people who provide an individual with practical or emotional support“. By that definition, it is clear that a support system is something that is needed …
trisomy 21
3 Tips for A Successful Future
Imagine trying to figure out your own life…and doing poorly at this. Imagine you are desperately seeking to determine what you need to do now, to ensure that you are not weeping later. Now, imagine …
5 Things To Consider When Planning For The Future
As family caregivers, we keep hearing that we should be planning for the future. We are constantly told that we must accept that we won’t be around forever and we should get our loved one …
How To Start The Conversation About Future Planning
Planning for the future of your loved one who has Down Syndrome is multifaceted. There are many moving parts, many pieces to the puzzle. One very important piece is having conversations. Conversations with your loved …
What Is Your Plan For The Future?
As a family caregiver, what is your plan for the future? Your future. Your loved one’s future. What does life look like 10 years or 20 years from now? Future Planning is one of, if …
What Happens To My Child If I Die?
Calling all parents of teenagers and adults who have Down Syndrome…I need you to pause and seriously consider the following words: What happens to my child if I die? Mom…or Dad…have you stopped to really …
What is Future Planning?
Imagine you are at work and you get a call. You are told that your mom, who is the primary caregiver for your brother, has been in a vehicular accident…and your brother was in the …
Facts About Compassion Fatigue
Chances are, this is the first time that you are hearing the term “compassion fatigue”…am I right? No worries guys, you are not alone. I mean, this is not exactly the sort of thing that …
November is Family Caregiver Awareness Month!
ATTENTION! Family caregivers all over the world…November is your month. November is Family Caregiver Awareness Month! It’s our time guys! To each and every one of you who has taken on the role of being …
World Down Syndrome Day 2020 – “We Decide”…Oh Really?
World Down Syndrome Day 2020 – “We Decide”. All people with Down Syndrome should have full participation in decision making about matters relating to or affecting their lives. Okay, so I’m just gonna be honest. …