There’s nothing like the thought of independent living…our loved one moving out to live on his/her own…that can send panic straight to the souls of parents and siblings who stand as caregivers. We entertain every …
trisomy 21
Caregivers Are Financially Burdened
Caregiving…it’s my humble opinion that persons who are not caregivers seldom understand what it truly means to be one. We, as caregivers, are somewhat responsible for this ignorance, as we walk around pretending that all …
Everything You Should Know Before Choosing Dental Sedation for Patients with Down Syndrome
Patients with Down syndrome may have difficulties going to the dentist. It can be an overwhelming experience, causing them to become too anxious to receive the dental care that they need. In these cases, dental …
Happy Siblings Day – Celebrate YOU!
Happy Siblings Day to those brothers and sisters known as “Sibs”. You are a “Sib” if you grew up with a brother or sister who has a disability. We are sometimes called “The Others”. We …
Focus on the Ability, Not the Disability
Down Syndrome is what I call a visible disability…as they see the person, they see the disability, and of course every preconceived notion presents itself. Something happened the other day that reminded me why it’s …
Oh Crap! 3 Tips For Wiping Your Butt
What can I say? Shit happens…literally. Bathroom woes are an all too common occurrence for a caregiver. I know this is not a topic that anybody really wants to address, but as caregivers, this is …
I Am So Not Ready to Live with My Sister
In a matter of weeks, my sister and I will be moving in together…and so it will be just us two. Sigh. I am so not ready to live with my sister. In all of …
Have You Helped or Hindered Your Child?
I had a conversation with the father of a woman who has Down Syndrome (DS) and this conversation taught me a few things. I learnt that there are parents out there, who upon getting the …
Caregivers – You ARE Doing a Good Job!
So, the other day, I took my sister to the podiatrist and someone in the office said something to me that really struck me. They said “You are doing a good job”. At first, I …
March 21st is World Down Syndrome Day…But What is Down Syndrome?
March 21st is World Down Syndrome Day…a day when we educate society on what Down Syndrome (DS) really is and not what they assume it to be. So, what is Down Syndrome? It took me …