Help for Family Caregivers of Teenagers & Adults with Down Syndrome
Help for Family Caregivers of Teenagers & Adults with Down Syndrome
Help for Family Caregivers of Teenagers & Adults with Down Syndrome
The holiday season is meant to be a time of joy, but for family caregivers, it can feel like a juggling act. You’re not only managing caregiving responsibilities but also holiday preparations that demand your time and energy. The unique stressors of the season can be overwhelming, and recognizing them is the first step toward …
Living as a Sibling Caregiver comes with its unique set of challenges and responsibilities. The emotional and physical toll of caring for your sibling can be overwhelming, often leaving us caregivers struggling to prioritize our own well-being. We’ve been through the trenches, and we know the struggle. Being there for our sibling, day in and …
I became my brother’s caregiver in 2021. We’re 3 years apart, so I guess you could say we’ve always bonded. Our parents are aging, and their mental health is declining, so I guess I always knew I would be caring for him eventually. My spouse and I just turned 31, and I get scared every …
I just found out that I am pregnant, and I am feeling excited and terrified at the same time. My husband wants to tell his family, but I am not ready to have these conversations with anyone right now. You know, the: These questions may seem harmless to the “regular” person, but these questions, once …
I am an older parent to a son who has Down’s Syndrome. I feel like all of my time and attention are consumed by my son, leaving my daughter, my husband and not to mention myself unattended to…basically ignored. Caring for my son is tiring and relentless. It’s tough now, but the future scares the …
There are moments when I run out of steam. Times when I am so fed up with people’s ignorance and the lack of resources for persons with Down Syndrome. There are times when I get tired of advocating for my child and I just wish I did not have to…I wish society was designed to …
Who has time to “get help”? Not me. I have to be working at a job I hate, working overtime and on weekends, just to attempt to cover the bills each month. I have to be monitoring my loved one…making sure the doctor visits are done, the prescriptions are filled, food is in the house, …
It’s the thing no family caregiver wants to admit that they are feeling. Why? Guilt. We think we are “bad” for feeling resentment towards our child, parent or another family member. We do not want to be the one to say “Hey guys! I am not okay with the fact that my child has Down …
Chances are, this is the first time that you are hearing the term “compassion fatigue”…am I right? No worries guys, you are not alone. I mean, this is not exactly the sort of thing that comes up in everyday conversation. I do believe, however, that it is important for family caregivers to be aware of …
Let’s set the scene: you are a caregiver, you’re unemployed or you have a job that you dislike and to add insult to injury, the income from this job does not cover your basic living expenses (rent, utilities, food, etc.). You are a caregiver who is financially burdened. Thus, you are wondering: How Can I …