I have fantasized about running away. Just packing it all up and moving to some corner of the world, away from all my family. Why? Because I want no one else’s responsibilities but my own. …
caregiver
Showing: 61 - 70 of 79 Articles
I Wish My Sister Did Not Have Down Syndrome
So, I often see articles where persons speak about how much of a blessing it is to have a sibling/child with Down Syndrome (DS). Honestly, I struggle with this sentiment. Do I love my sister? …
Sex and Down Syndrome
Sex and Down Syndrome…for some reason, it is believed by some persons that people with Down Syndrome are “forever children”, thus, sex, sexual desires, sexuality is a non issue. Ha! That’s what you call Fake …
Focus on the Ability, Not the Disability
Down Syndrome is what I call a visible disability…as they see the person, they see the disability, and of course every preconceived notion presents itself. Something happened the other day that reminded me why it’s …
Disability Day of Mourning – March 1
The International Disability Day of Mourning (DDoM) is recognized worldwide every year on March 1st. People across the globe join to remember persons with disabilities who were murdered by their parents/caregivers/family members. Yep…you read right…murdered…and …
Oh Crap! 3 Tips For Wiping Your Butt
What can I say? Shit happens…literally. Bathroom woes are an all too common occurrence for a caregiver. I know this is not a topic that anybody really wants to address, but as caregivers, this is …
I Am So Not Ready to Live with My Sister
In a matter of weeks, my sister and I will be moving in together…and so it will be just us two. Sigh. I am so not ready to live with my sister. In all of …
I Need Professional Help
So today I went to my first counselling session…to deal with the issues that I am having because I am a caregiver. All along I have been trying to hold everything inside and “deal with …
I Feel Defeated
It’s one of those days…a day when I feel like I cannot be bothered anymore. I am tired of my sister not being the adult that her age says she is. I am tired of …
I Have No Social Life
That feeling…you go to work, you go home. Or you go to school, work and then go home. Or you go to work, church and home. What’s that feeling? It’s what makes you pause and …