Happy Siblings Day to those brothers and sisters known as “Sibs”. You are a “Sib” if you grew up with a brother or sister who has a disability. We are sometimes called “The Others”. We …
down syndrome
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Focus on the Ability, Not the Disability
Down Syndrome is what I call a visible disability…as they see the person, they see the disability, and of course every preconceived notion presents itself. Something happened the other day that reminded me why it’s …
Sexual Assault Awareness Month – I Ask
April is Sexual Assault Awareness Month in the US and the theme for this year is ‘I Ask’. This year’s theme is all about consent…why it’s important to ask for someone’s consent, how to ask …
Oh Crap! 3 Tips For Wiping Your Butt
What can I say? Shit happens…literally. Bathroom woes are an all too common occurrence for a caregiver. I know this is not a topic that anybody really wants to address, but as caregivers, this is …
I Am So Not Ready to Live with My Sister
In a matter of weeks, my sister and I will be moving in together…and so it will be just us two. Sigh. I am so not ready to live with my sister. In all of …
Sometimes, Down Syndrome Just Plain Sucks
Yep, I said it. Sometimes, Down Syndrome (DS) just plain sucks. It sucks that your sibling has to deal with all the things that come with being someone with a disability and it sucks that …
Are You Obligated to Take Care of Your Sibling?
Are you obligated to take care of your sibling who has Down Syndrome (DS)? Quite frankly…no. They are your brother or sister…not your child. Your parents have that obligation. You could be the type of …
Have You Helped or Hindered Your Child?
I had a conversation with the father of a woman who has Down Syndrome (DS) and this conversation taught me a few things. I learnt that there are parents out there, who upon getting the …
Caregivers – You ARE Doing a Good Job!
So, the other day, I took my sister to the podiatrist and someone in the office said something to me that really struck me. They said “You are doing a good job”. At first, I …
March 21st is World Down Syndrome Day…But What is Down Syndrome?
March 21st is World Down Syndrome Day…a day when we educate society on what Down Syndrome (DS) really is and not what they assume it to be. So, what is Down Syndrome? It took me …